Sunday, March 16, 2008

Still sick, and Conference

Yes, everyone is still sick. I thought the boys were on the mend, but they are both coughing horribly, and keep getting tummy cramps. I don't think either of them have any fever today, though. Sofia started fever yesterday, and also has that horrible hacking cough and frequent cramps. And my nose is drippy. Ugh. So I think no school for anyone tomorrow.

On a good note, I did get out of the house yesterday, to attend the Mass Down Syndrome Congress's first Parent Leadership conference. Apparently I am officially a Support Group Coordinator (due to my organization of all the new babies from our EI group). The first part of the program was for Support Group Leaders from all over the state. It was great to hear about what everyone is doing, and we brainstormed ways the organization could help us be more coordinated. Then the First Call volunteers joined us. MDSC has the best model in the nation for First-Call (people who contact new families). So that was fun, to talk about what works and doesn't work when we discuss our kids.

Lunch was the best. While we ate, first the president of MDSC spoke a little, and then the keynote speaker was Dr. Jose FLorez, who runs the DS clinic at MGH. His clinic is for adults - his partner does ages 12 - 22, and he does 18 and older. It was a tremendously terrific presentation, and probably the first time in 3.5 years that I really understood what the heck Sofia's heart defects really look like!

The only problem with the conference was that it was too short. We all agreed that we want to meet twice a year.

So at least I got out a bit. Today I just took the kids to the playground for a while to air them out. David is on his way to Minnesota for a few days.